HyperSupers – TDAH France is a state recognized association (law dated 1901) that aims to inform and assist patients, families and adults who are affected by this disorder, to intervene in their behalf in approaching and accessing public and private resources, to promote research, enhance early detection, and improve treatment, and to facilitate social and academic integration for children, teenagers and adults who have ADHD.
How did HyperSupers - TDAH France come to life?
The association came to life through an internet discussion. Parents of children with ADHD who were looking for the proper diagnosis tried to benefit from their educational competence and come out of their social isolation. It became obvious that parents had to wade through endless medical examinations prior to obtaining the proper diagnosis. Our young people had already reached their teens, other parents were struggling with social services who were threatening to put their children in foster homes, since they were convinced that their parents had poor parental skills, due to inaccurate diagnosis or refusal to consider this disorder.
Faced with the lack of recognition of the French institutions, five of us were motivated to create a support system to try to ease the suffering of children and their families. We saw that our close European neighbors were better equipped than the French families to face this disorder. The French ADHD association was created to support families and to try to prevent a long and chaotic medical process, in the hope that an early diagnosis can improve the future for these children both in their academic as well as in their social and professional life, in their teenage and adult life. This would also help to reduce the social cost of ADHD in France (for example early school drop-outs, drugs, alcoholism, suicide …)
For this purpose, we have united families and ADHD adults to get them out of their social isolation, and we applied for official status in 2002. From that point on everything moved well (after 2 months of existence, we had 20 people volunteer to support parents all over France). Our first communication tool was our web site. Today our association numbers 800 members and 50 volunteers.
Goals of the association
- to make ADHD better known.
- to provide a means for families and adults to get together.
- to support ADHD.
- To assist the person(s) during their search for a correct diagnosis.
- To inform them regarding the school orientation system
- To combine the common experiences in order to achieve solutions so that the person will be more able to handle ADHD better on a daily basis or during his/her professional, family and school life.
- to disseminate information about this disorder, its detection and the training of government officials, teachers and the media.
We desire to achieve the following
- The implementation of training for MD, pediatricians, school psychologists and a better detection of the problem.
- Training in all the screening centers in order to facilitate the detection of language troubles in conjunction to the ADD diagnosis by the levelling of the diagnostic tools and by assisting for a better coordination between pediatric and neurology departments.
- Ensuring that centers that possess re-education training structures have multimodal care units
- Continuing training and increasing the numbers of qualified speech therapists, Physiotherapists, Occupational therapists for treating ADHD.
- An increase of cognitive behavioural therapist and the financial support by government medical insurance (sécurité sociale)
- Increasing the information on ADHD in IUFM and continuing the education for teachers, in order to set up special therapeutic adjustment individual programs for these children as well as support structures for teachers who have to deal with these children’s special needs.
- Changes to the government guide list classification so that ADHD is classified as a language disorder and improve information of the difficulties caused by ADHD in order to help families establish the re-educational measures needed.