There are real challenges people with ADHD face. We want to understand real ADHD experiences:
• Barriers to getting diagnosed
• Gaps in support and services
• Access to treatment and care
• Daily stigma and discrimination
• What’s helping — and what’s missing
Across Europe and the United Kingdom, many individuals and families continue to experience significant challenges due to inconsistencies in awareness, assessment processes, and access to appropriate support. While national systems differ, the need for informed policy development and improved service provision is shared across regions.
We are looking for Adults residing in Europe or UK
Aged 18 or older. Have an ADHD diagnosis OR are currently on a waiting list for an ADHD diagnosis. To complete the survey for yourself as an adult
We are looking for Parents or Carers residing in Europe or UK
Your child is under 18 years of age. Your child has an ADHD diagnosis. OR is currently on a waiting list for ADHD diagnosis. To complete the survey on behalf of your child.
The aim of this survey is to understand the experiences of people with ADHD across Europe, including : Exploring the barriers to diagnosis and challenges faced : Identifying existing and missing support for living with ADHD : Driving pathways to care for treatments & psychological well-being : Examining the lived experience of facing stigma on a daily basis : Understanding when discrimination occurs.
Your experiences matters.
Are you ready to start the survey? Please do not complete the survey if you live outside Europe.
Are you willing to help support our important Europe-wide initiative aimed at strengthening understanding, diagnosis, and care pathways for Attention Deficit Hyperactivity Disorder (ADHD)?
- Here is how you can help. We have prepared some letters which you can download or use electronically or quick links to our social media posts to share directly from there
- to give to your child/rens school to ask them to help distribute the letters.
- place at your workplace bulletin board
- email to your friends, colleagues or network
- ask your healthcare professional if they can share with their patients
- download the flyer and use as a poster that could be mounted in medical colleges, universities, hospitals, public places etc.
- take along to seminars, conferences, public events
Talk about ADHD everywhere (local schools, colleges, universities, workplace, social gatherings)
Your contribution will enable us to:
✅ Advocate with policy and decisionmakers
✅ Improve support for people with ADHD across Europe
✅ Strengthen services for people with ADHD
✅ Identify the gaps in services to develop more specialised ADHD clinics
Your participation is voluntary and anonymous:
Participation is voluntary. You do not need to provide your name or any identifying information. All responses are anonymous and will be used only for research, reporting and advocacy purposes. You can withdraw at any time before submitting your responses.
You may pause and return later, but please use the same browser and device (not Incognito/private mode) to ensure your responses are saved. You may withdraw at any time by exiting the survey — no data will be saved unless you submit it. Answer all questions as accurately as possible.
You are free to skip any questions or stop participating at any time without consequence.
Your Rights:
You have the right to:
Withdraw your consent at any time before submitting the survey
Request access, correction, or deletion of your data (if any identifiable information were ever collected)
If you have any questions about the study, you are welcome to contact us at: survey@adhdeurope.eu
Data Protection & Privacy (GDPR):
ADHD Europe is the data controller. Survey data is stored securely on Qualtrics servers.
Data will be retained indefinitely for research, reporting, and advocacy.
Donate to us
If you can afford it, donate to ADHD Europe to support our work. We are very much grateful for taking the time to donate to help contribute to the work that lies ahead of us. Every euro makes a difference.
